Living with Parkinson's disease means managing a complex and ever-changing array of symptoms. Optimal care involves a multidisciplinary approach, bringing together professionals from various medical fields to address the wide-ranging impacts of the condition. We love our clients with Parkinson’s at EW Motion Therapy, and we always consider it a privilege to be a part of their care team. Many of our physical therapists are LSVT Big-certified and are ready to create custom treatment plans to address the motor symptoms of Parkinson’s. You may decide that our services don’t fit your needs, but understanding the roles of these professionals and knowing how to find the right ones for your unique needs can make a significant difference in managing Parkinson's disease effectively.
Understanding Parkinson's disease: components requiring medical treatment
Motor symptoms
Parkinson's disease is perhaps best known for its motor symptoms, which include tremors, bradykinesia (slowness of movement), rigidity (stiffness), and postural instability (balance problems). These symptoms arise due to the brain’s loss of dopamine-producing cells. Managing these symptoms typically involves a combination of medication, physical therapy, and, in some cases, surgical interventions like deep brain stimulation (DBS).
The treatment for motor symptoms is highly personalized, as the type and severity of symptoms can vary widely among individuals. Neurologists and movement disorder specialists play a critical role in devising and adjusting treatment plans, which may include medications like Levodopa, dopamine agonists, and others. Regular consultations are necessary to fine-tune the treatment as the disease progresses.
Non-motor symptoms
Parkinson's disease also encompasses a range of non-motor symptoms that can significantly affect quality of life. These include sleep disturbances, mood disorders (such as depression and anxiety), cognitive decline, autonomic dysfunction (such as constipation and blood pressure fluctuations), and sensory symptoms (such as loss of smell).
Addressing these non-motor symptoms requires a team approach involving neurologists, mental health professionals, sleep specialists, and other healthcare providers. Medications, lifestyle adjustments, counseling, and supportive therapies like speech and occupational therapy are commonly employed strategies. Regular monitoring and communication with your care team are vital to manage these varied symptoms effectively.
Medication side effects
While medications are a cornerstone of Parkinson's treatment, they can also produce side effects like dyskinesia (involuntary movements), hallucinations, and orthostatic hypotension (a drop in blood pressure when standing up). These side effects can be as debilitating as the disease symptoms themselves and require careful management.
Your neurologist is crucial in managing these side effects, often through medication adjustments or the addition of new treatments. It's essential to report any side effects you experience, as addressing them early can prevent complications and improve your quality of life.
Parkinson's disease is a multifaceted condition that affects each person differently. Effective management requires recognition and treatment of the different components of the disease—from motor symptoms to non-motor effects and medication side effects. By building a comprehensive care team and staying informed about your condition, you can navigate the challenges of Parkinson's disease with confidence and support. Remember, managing Parkinson's is a team effort, and you are the most essential team member.
The core members of a Parkinson's care team
Neurologists and movement disorder specialists
Neurologists are the cornerstone of any Parkinson's care team. They specialize in treating nervous system disorders, including those of the brain, spinal cord, and nerves. A neurologist typically diagnoses Parkinson's disease and oversees its medical management, adjusting medications as needed and monitoring for side effects.
Finding a neurologist who specializes in movement disorders is beneficial. These specialists have additional training in Parkinson's disease and other similar conditions, making them highly skilled in tailoring treatment plans to individual needs. Consider seeking recommendations from your primary care physician or local support groups or utilizing online resources like the Parkinson’s Foundation's website.
Physical therapists
Physical therapy is vital for maintaining mobility, flexibility, and balance. Physical therapists (PTs) design personalized exercise programs to help manage Parkinson’s symptoms, such as tremors, stiffness, balance issues, gait dysfunction, and slow movement. They can also guide the use of assistive devices and make home modifications to ensure safety and promote independence.
Look for a PT with experience working with Parkinson's patients or, better yet, a certified neurological clinical specialist through the APTA. LSVT Big is another reputable organization through which a physical therapist can become a certified instructor. Your neurologist, local Parkinson's support groups, or organizations like the APTA or the Parkinson’s Association can recommend a PT.
Additional supportive care professionals
Occupational therapists
Occupational therapists (OTs) focus on improving your ability to perform daily activities, from dressing to cooking. They can suggest adaptive equipment and strategies to maintain independence, enhance safety, and manage fatigue.
Find an occupational therapist with experience in neurologic conditions. Your neurologist, physical therapist, or local health organizations can provide referrals. Ensure the therapist understands Parkinson's disease and its specific challenges.
Speech-language pathologists
Parkinson's can affect speech clarity, volume, and tone. Speech-language pathologists (SLPs) assess these issues and provide therapies to improve speech and swallowing. They can also introduce alternative communication strategies if necessary.
Look for a speech-language pathologist who has experience with Parkinson's patients. Referrals may come from your neurologist or other members of your care team. Organizations like the American Speech-Language-Hearing Association can also help you find qualified professionals.
Mental health professionals
Living with Parkinson's can be challenging, not just physically but also emotionally. Psychologists, psychiatrists, or licensed counselors can provide support for depression, anxiety, and other mental health issues that often accompany Parkinson's.
Seek a mental health professional familiar with chronic illness management, preferably with experience in neurological conditions. Referrals can come from your medical team or local support groups.
Support groups
Many communities have Parkinson’s support groups, where people with the condition can come together and participate in activities. They may host workshops, exercise classes, or game nights, and they are often a great opportunity to connect with other Parkinson’s patients in your area and get information on recommended resources.
Finding the best professionals for you
Utilize resources and networks
Start with referrals from your current healthcare providers. Local and online Parkinson's support groups are also excellent resources for recommendations. Additionally, specialized websites and organizations related to Parkinson's disease often have directories of professionals experienced in working with Parkinson's patients, including the Parkinson’s Association.
Assess compatibility and comfort
When selecting healthcare professionals, consider their expertise and how comfortable you feel with them. Communication is crucial: you should feel heard, respected, and comfortable asking questions. Feel free to meet with several professionals to find the best fit for your needs and personality.
Continuous evaluation and communication
Your condition may change, and your needs may also evolve. Regularly assess whether your care team continues to meet your needs and communicate any changes with them. A good professional will understand and support adjustments to your care plan.
Building a comprehensive and cohesive Parkinson's care team is crucial to managing the disease effectively. Each professional plays a unique role in addressing the various aspects of Parkinson's, contributing to a holistic approach to care. By understanding the roles of these professionals and how to find the ones best suited to your needs, you can take an active role in managing your health and maintaining your quality of life. Remember, you are not alone in this journey—a community and a team of professionals are ready to support you every step of the way. We consider it a privilege to help our Parkinson’s patients at EW Motion Therapy pursue healthy movement and continue their favorite activities safely. To reduce fall risk in your home, click the button below to download our free home safety guide.
